RareUniversity.com will launch in conjunction with the Fifth Annual RARE Patient Advocacy Summit, September 22-23, 2016.
BOSTON, MA AND ALISO VIEJO, CA (PRWEB) AUGUST 18, 2016
Global Genes, a leading global advocacy organization for patients and families fighting rare and genetic diseases, and PlatformQ Health today announced a strategic partnership to develop a first of its kind Educational Platform. The goal of this program is to equip advocates and clinicians with comprehensive tools to help navigate the complex world of rare disease education and advocacy. The Beta launch of the platform will coincide with the RARE Patient Advocacy Summit™ in Huntington Beach, California. Register today.
Rare disease affects 1 in 10 in the US and 350 million worldwide. While each disease is rare, about 80% are due to a genetic disorder. Together they define a group of over 7,300 ailments from Alzheimers to Zygomycosis.
Access to accurate information about rare disease is inconsistent and infrequent for patients and clinicians. With the community connecting globally across all disciplines, access is increasingly more difficult and has created significant barriers to progress. This collaboration intends to change that paradigm.
Global Genes and PlatformQ Health are proud to partner to overcome this fundamental challenge, launching an interactive online rare disease medical education platform – RareUniversity. RareUniversity will align and exponentially increase the availability of educational resources for patients, caregivers, advocates, clinicians, and organizations in the rare disease community. Both Global Genes and PlatformQ Health bring unique strengths to the partnership that are complimentary and will be the basis of this comprehensive educational tool.
“Education is at the core of what Global Genes is committed to providing to patients and caregivers. It is a catalyst for success and a driver of change,” says Global Genes CEO, Nicole Boice. “In our desire to increase patient impact, we look to other innovators to help us grow to meet the increasing needs of this community. RareUniversity and our partnership with PlatformQ Health will help us meet and exceed these goals. We are honored to be collaborating and continuing to drive value for all of the rare disease stakeholders who need more insights and tools.”
PlatformQ Health is a leading organization that provides live and on demand online continuing medical education to clinicians, patients and caregivers in a variety of therapeutic areas.
“Accurate and clinically valid education, including reporting on breakthroughs in research and development, is one of the most valuable tools anyone facing a rare disease can have,” says Robert Rosenbloom, CEO of PlatformQ Health. “Together with Global Genes and the organizations they serve, RareUniversity will provide a trusted educational platform to measurably improve the state of rare disease education and advocacy.”
RareUniversity.com is set to launch next month, at the RARE Patient Advocacy Summit, September 22-23, 2016 in Huntington Beach, California. Partnership and education support opportunities can be sent to: info(at)platformqhealth(dot)com.
About Global Genes
Global Genes is a leading global advocacy organization for patients and families fighting rare and genetic diseases. Global Genes works to eliminate rare disease challenges by building awareness, developing patient-focused educational tools, and funding patient care programs and early investigative research. Recognized worldwide by the Blue Denim Genes Ribbon™, Global Genes is dedicated to uniting experts, advocates, patients and their families.