A detailed survey of PlatformQ Health (PQH) digital education attendees found patients and families are realizing meaningful changes as a result of the learnings they gained during these programs. 335 participants across the PQH learning channels RareDiseaseLive, MedLive CancerCoachLive, and NeuroCareLive responded to the survey.
The vast majority (85%) of respondents agreed or strongly agreed that they felt more knowledgeable about available treatment options after completing a patient education program.
66% of respondents agreed or strongly agreed that their participation in the patient education program offered tools for facilitating a dialogue with their doctor about questions they have related to treatment choices and goals as well as concerns such as medication side effects.
The next question explored whether patient education was a catalyst for positive changes. To that end, 61% of respondents reported that after completing the patient education program, they had made changes such as exercising or eating a healthier diet to help manage their condition and improve their daily life.
Many of the patient education programs are co-created with leading patient advocacy organizations. In this question, 73% of respondents agreed or strongly agreed that the program helped them to become aware of organizations and communities that can offer support for their condition.
The final survey question related to awareness about symptoms and other problems where the patient should seek medical assistance. After completing a patient education program, 74% of respondents agreed or strongly agreed that they felt equipped to recognize these symptoms and to seek appropriate support.
These promising findings demonstrate the importance of ongoing education for patients and caregivers. The added knowledge is valuable for enhancing communication among patients and providers, understanding the latest treatment options in an ever-changing medical landscape, and connecting patients to community resources dedicated to improving their quality of life.
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