
Fall 2023 Partnership Pulse
As we look forward to the holiday season, we are filled with gratitude to all our incredible partners. Read More

Driving Equitable Healthcare through Patient and Provider Education
PlatformQ Health, the Asthma and Allergy Foundation of America (AAFA), and BlackDoctor.org were seeking to understand whether aligned (sequential patient/provider) education could help improve health equity for those suffering from conditions such as asthma and atopic dermatitis. Read More

Unexamined Ways to Drive Clinical Trial Enrollment
Clinical trial recruitment has been a persistent problem, with studies showing up to 55% of trials are canceled prematurely due to low enrollment rates. These rates are even more dismal when it comes to diverse populations, including ethnic and racial minorities as well as seniors. Common methods for improving trial access such as transportation supports have been well documented, yet there are numerous other avenues for improving the patient experience that have yet to be uncovered. Read More

Program Outcomes Demonstrate High Need for Immunotherapy Education
Immunotherapy is increasingly being used to treat patients with melanoma and other types of cancer. Management of these therapies differs distinctly from previous standard-of-care options such as chemotherapy. Optimizing care involves educating a multidisciplinary healthcare team about therapy management as well as educating patients about therapies and the factors that can influence outcomes. Read More

High Need for Patient and Provider Education Amid Approval of Anti-FcRn Agents and C5 Inhibitors
In the wake of FDA approvals for treating myasthenia gravis (gMG, healthcare providers have the ability to individualize treatment. As these new therapies become adopted, it's crucial to educate patients and providers about issues such as disease presentation, comorbidities, and patient preferences that may impact treatment decisions. Read More

A Pressing Need for Gene and Cell Therapy Education
The explosion of gene and cell therapies brings promise - and a plethora of questions - from patients and healthcare providers. CAR T-cell therapy is a notable example. These one-time treatments are providing durable remission and in some cases cures of recurrent blood cancers. Due to the complexity of CAR T-cell therapy, it is currently available exclusively at specialized medical centers. Read More

Multi Stakeholder Collaborations Poster Selected for NORD’s Lightning Round Poster Presentation
PlatformQ Health is excited to share that our poster session “Incorporating the Patient Voice in Rare Disease Education: Multi Stakeholder Collaborations to Improve Diagnosis, Quality of Care, and Outcomes” was selected to be presented both at the 2023 NORD Breakthrough Summit and at the Lighting Round Poster Presentations taking place from 4:30-5:00 PM on Monday, October 16. Read More

Educational Initiatives in gMG, DMD and SMA
Numerous posters of educational outcomes have been published at major conferences over the past three years across neuromuscular conditions, including Duchenne muscular dystrophy (DMD), myasthenia gravis (mGM), and spinal muscular atrophy (SMA). These posters highlight the advantages of aligned patient/provider education for closing knowledge gaps and aligning expectations between patients and providers. Read More

Summer 2023 Partnership Newsletter
It’s been a busy season here at the Q, with many educational programs launching across therapeutic areas. Thanks to partnerships with leading advocacy and membership organizations, we have been able Read More

Making Behavioral Changes in Clinical Trial Representation
There has been much discussion in the medical community about the imperative to improve equity in clinical trials, but what really helps when it comes to changing patient and provider perceptions? Read More

Lighting the Way Forward: Addressing Depression in People Facing Diminished Vision
Being diagnosed with macular degeneration is a shock to most patients, some of whom have no symptoms at the time. The prospect of losing some, or all of your sight can be devastating, and often leads to depression, as patients worry over the potential loss of independence and changes to their lives. Read More

Join Us for a Conversation about Improving Equity in Clinical Trials
We’re proud to sponsor the 3rd annual Chief Patient Officer Summit, and to participate in an important conversation about improving equitable representation in clinical trials. With five years of producing digital education focused on trial diversity, we’re pleased to be able to share insights into strategies that can change behaviors and break down barriers to trial enrollment. Read More