A 3-Part CME Program on Rett Syndrome

A 3-part CME-accredited program produced in collaboration with the International Rett Syndrome Foundation (IRSF) and the National Organization for Rare Disorders (NORD) to enhance clinicians’ ability to diagnose Rett syndrome accurately and in a timely manner, foster greater awareness of newly approved therapies and their place in care and how to effectively leverage team-based approaches to manage the multidisciplinary care needs of patients with Rett syndrome, particularly in community-based settings or care deserts.

Available Sessions

Part 1: Understanding Novel Treatment Options

Newer therapies are now available for the treatment of Rett syndrome, but questions remain about how to integrate them into care, particularly in community-based settings. Join an expert panel who will elucidate the central role of the neurologist in the care of patients with Rett syndrome. For complete CME program information, please see here.
Learning Objectives:
  • Recognize early signs and symptoms of Rett syndrome to enable early diagnosis and treatment initiation
  • Discuss recent therapeutic advances in Rett syndrome and associated impacts on patient care
  • Describe the evolving role of neurologists in the management of patients with Rett syndrome
  • Develop personalized management plans for patient with Rett syndrome

Part 2: Coordinating Multidisciplinary Care

With newer therapies now available for the treatment of Rett syndrome, it is essential that the challenges of managing patients with Rett syndrome in resource-poor areas or “care deserts” be addressed. Join an expert multidisciplinary panel who will provide an overview of newly available therapies for the treatment of Rett syndrome and explore the increased importance of neurologist-gastroenterologist collaboration for adverse event monitoring and management.
Learning Objectives:
  • Summarize the components of the multidisciplinary approach for Rett syndrome
  • Discuss the need for enhanced neurologist-gastroenterologist collaborations for optimal adverse-event monitoring and management
  • Apply relevant strategies to facilitate team-based care in Rett syndrome in the community settings
  • Recognize where new treatments fit in the multidisciplinary care of Rett syndrome

Upcoming Session: July 25, 2024

Part 3: Addressing Barriers

In this activity, an expert multidisciplinary panel will discuss their real-world experiences integrating novel treatments for Rett syndrome into clinical care. Experts will also share proven strategies to improve care coordination and address barriers for patients with Rett syndrome, including through the use of telehealth and ECHO programs.
Learning Objectives:
  • Discuss real-world experiences with newly available therapies for the treatment of patients with Rett syndrome
  • Explain the practical considerations involved in collaboration between community neurologists, the multidisciplinary team, and centers of excellence, such as development of ECHO programs and use of telehealth
  • Use strategies to ensure effective management of Rett syndrome in the community setting, including monitoring therapy response, managing adverse events, ensuring continuity of care, and transitioning from pediatric to adult care

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This activity is supported by an independent educational grant from Acadia Pharmaceuticals Inc.