Rare Disease, Migraine and MS Front and Center at AAN
PlatformQ Health was proud to present two posters – a traditional poster and an e-poster – at this year’s Annual Meeting of the American Academy of Neurology. Alongside VP of Education Jayne Chaplick, Senior Medical Director Anne Roc attended to present the posters, which focus on insights from previous PQH educational initiatives.
While at the meeting, Roc noted that some conditions were being met with more attention than others. Multiple sclerosis, a topic of focus of one of the posters, continued to be a key area of interest. Migraines were also well-covered in the exhibit hall, particularly in light of emerging targeted therapies through calcitonin-gene-related peptides (CGRPs), two of which may receive FDA approval this year.
What stood out as a new development to Roc this year was the representation of rare diseases in neurology that was present in the exhibit hall. Spinal Muscular Atrophy (SMA), a set of inherited disorders that are characterized by the loss of motor neurons in the spinal cord that affects about 1 in every 10,000 births, was one of the rare conditions included in the poster hall. Primary Periodic Paralysis (PPP), “a group of rare, inherited neuromuscular conditions that are characterized by interference with the electrical-chemical communications between nerve cells and skeletal muscles,” was also present, along with amyloidosis, in which an abnormal protein builds up in any tissue or organ and can result in cardiomyopathy.
Reflecting on her time at AAN Roc, who holds a PhD in neuroscience, noted, “If I were a practicing neurologist, I would appreciate all of the different formats that the Academy offered. They had information about wellness, maintaining work-life balance, reimbursement – they really bothered to go through the day-to-day. In addition to the discussions on CME, there were so many very helpful, practical strategies shared. They were really serving their membership in many ways.”
Remarking on her experiences with other attendees, Roc explained, “I also ran the 5k for brain research, and got to meet some really interesting folks who were working on all sorts of things – I was so pleased to be able to represent PlatformQ Health at such a great event.”
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