In the wake of FDA approvals for treating myasthenia gravis (gMG, healthcare providers have the ability to individualize treatment. As these new therapies become adopted, it's crucial to educate patients and providers about issues such as disease presentation, comorbidities, and patient preferences that may impact treatment decisions. Read More

The explosion of gene and cell therapies brings promise - and a plethora of questions - from patients and healthcare providers. CAR T-cell therapy is a notable example. These one-time treatments are providing durable remission and in some cases cures of recurrent blood cancers. Due to the complexity of CAR T-cell therapy, it is currently available exclusively at specialized medical centers. Read More

PlatformQ Health is excited to share that our poster session “Incorporating the Patient Voice in Rare Disease Education: Multi Stakeholder Collaborations to Improve Diagnosis, Quality of Care, and Outcomes” was selected to be presented both at the 2023 NORD Breakthrough Summit and at the Lighting Round Poster Presentations taking place from 4:30-5:00 PM on Monday, October 16.  Read More

Numerous posters of educational outcomes have been published at major conferences over the past three years across neuromuscular conditions, including Duchenne muscular dystrophy (DMD), myasthenia gravis (mGM), and spinal muscular atrophy (SMA). These posters highlight the advantages of aligned patient/provider education for closing knowledge gaps and aligning expectations between patients and providers. Read More

It’s been a busy season here at the Q, with many educational programs launching across therapeutic areas. Thanks to partnerships with leading advocacy and membership organizations, we have been able Read More

There has been much discussion in the medical community about the imperative to improve equity in clinical trials, but what really helps when it comes to changing patient and provider perceptions? Read More

Being diagnosed with macular degeneration is a shock to most patients, some of whom have no symptoms at the time. The prospect of losing some, or all of your sight can be devastating, and often leads to depression, as patients worry over the potential loss of independence and changes to their lives.  Read More

We’re proud to sponsor the 3rd annual Chief Patient Officer Summit, and to participate in an important conversation about improving equitable representation in clinical trials. With five years of producing digital education focused on trial diversity, we’re pleased to be able to share insights into strategies that can change behaviors and break down barriers to trial enrollment. Read More

“Black women are 71% more likely to die of breast cancer than their White counterparts, so you have to question what is going on here,” she says. “Although there was knowledge in the medical community about inequities, it seemed like the default response was that this was all associated with poverty or lack of insurance, but what I found is that it’s more nuanced than that. There was bias that was contributing to these disparities. Even if a Black woman had adequate insurance and income, she was often not being presented with the standard of care.” Read More

Data collected before and after continuing medical education on the management of familial hypercholesterolemia (HoFH) showed that provider knowledge and competence was notable improved after the session. A poster session presented at the 2023 National Lipid Association Scientific Sessions demonstrated that CME that included patient voice enhanced the ability of providers to adapt to the changing HoFH treatment landscape.  Read More

There is a high burden of multiple sclerosis (MS) in the Black, Asian, and Hispanic communities, yet clinicians are often not prepared to care for diverse populations of patients. To Read More

With the growth of biologic agents to treat severe asthma, there is an increased need for shared decision-making between patients and healthcare providers. A poster recently accepted to the 2023 American Thoracic Society conference highlights the value of tethered education (otherwise called aligned education) for this purpose. This involves having a patient program, followed soon after by a provider program where we share insights from the patient program with providers. Read More